Dear Preemie Mom

Dear Preemie Mom:

I see you. I see you, scared and confused, as you have to leave your baby behind in the hospital because he was early and he needs a lot of help. I see you taking notes as the doctor explains all the machines and sounds that surround your tiny, sweet baby. I see you trying your hardest to take it all in - all the medical jargon, all the dates and times and schedules - but your eyes keep wandering back to your baby in her isolette as you wonder when you will be able to hold her.

I see you driving to the hospital day after day, determined not to miss a second with your little one. I see your shoulders slump as you prepare yourself for another long day of visiting your baby and then leaving him behind once again.

I see you as you get to take your baby home - a time filled with such joy and excitement, and also a little bit of fear. You wonder if you will be able to take care of her like the doctors could. You wonder if you will be enough.

I see you a couple months down the line, rejoicing over having your baby with you at all times but becoming frustrated that your baby needs so much attention all the time. Doctors, specialists, therapists - it seems like your life now revolves around when the next appointment is and how long it will take you get there. You try to remind yourself that you should be grateful, because your baby has had to fight harder than most to even make it this far. But that doesn't always help your frustration. Sometimes it even adds to it. Why did your baby have to fight so hard? Why did this happen to your family? You ask yourself these questions every day but no answer seems right.

I see you at the birthday party for the child of a friend, a child who was born around the same time your own child was due, before they came so early. I see your smile, which is genuine, but it isn't the same smile it used to be. Because while you are happy for your friend and her child, it hurts to see how behind your own child is, and what a long way he has to go.

I see you crying late at night, wracked with guilt and worry and anger. If only you had been able to keep your baby inside a little longer...if only you had insisted the doctors take a second look at the scan... if only you hadn't had so much caffeine or sugar or whatever else you think could have contributed to your baby's prematurity. I see you blaming yourself, wondering what you can do to right this terrible wrong.

I see you decline invitations to playgrounds, to lunch, to so many places that first year. You're so afraid of your little boy getting sick. The doctors told you that this first winter was crucial, that you should not go out unless you absolutely had to. So you sit alone with your baby, knowing that it will all be worth it in the spring.

I see you carefully pack your diaper bag - yours isn't always like other people's diaper bags. You need a lot of hand sanitizer, extra oxygen tanks, some masks that keep germs away. You venture into the grocery store like a soldier approaching a battlefield - assessing risk, wondering how quickly you can finish your task, praying that when you leave, everyone will still be healthy.

I see you stammer and flounder when someone asks you how old your baby is. You know if you give the real answer that there will be so many questions, and you are tired of questions. But to you, giving any other answer feels like a disservice to your child, like you aren't acknowledging all of the hard work she put into coming into this world. So you split the difference - sometimes you tell people the real age, and sometimes you don't. It changes every time you are asked.

I see you wondering if you are the kind of mother your baby really needs. You think that someone else would be much better suited for all of this. All of the therapy and special arrangements that have to be made - you think you aren't cut out for this. You don't know how you will make it through. You look back to the life you had before - maybe you used to work and now you have to stay home. Maybe you want to stay home but you have to work. Either way, it is not the life you planned for yourself. It is not how you imagined having a baby would be.


I don't have answers for you. I wish I did. I want answers for me, too. But I want you to know that I see you. I see you, and you are not alone.

Sincerely,

A Preemie Mom

MOPS

This weekend, I had the honor of speaking at a meeting for MOPS, an organization for moms with kids ages birth to kindergarten. It was such an amazing experience! I had a great time there and everyone was so welcoming. Special thanks to Hannah for asking me to come! A few people asked me to share what I spoke about here, so this is me, doing what you want. Enjoy.

And if you thought this post was going to be about cleaning...No. I don't clean.

Let me ask you a question: What do a dictionary, my favorite pair of boots, and a box of baby wipes have in common? They are all heavier than my son was when he was born.

On February 22, 2013, I woke up to what I expected to be an ordinary day. The first thing I did was shower and shave my legs, which should have been a sign that this day was going to be a weird one, but I didn't think much of it at the time. I was 26 weeks pregnant with my first child and was heading to my monthly check-up at the OB's office. We knew were having a boy, and we knew we were naming him Joshua Michael. Michael, after both our dads and my husband, and Joshua, because that is one Biblical dude you don't want to mess with.

I drove to my appointment, hoping it wouldn't take too long so I wouldn't miss too much work. I was saving up my vacation days for maternity leave that I was supposed to start in June and didn't want to waste any time. Plus I had leftover chicken fingers in the car that I was planning to eat on the way to work because that's how I roll. However, Joshua had other plans. After I arrived at my appointment and had been examined, the nurse realized that I was developing pre-eclampsia, a condition that is dangerous for both pregnant mothers and unborn babies. She sent me to the local hospital. I called my husband on the way there, trying to act like it was no big deal and that he should only come if he reeeaaally wanted to. He really did, so he and my mom met me there.

When I got there I was more annoyed than anything. I knew everything would be fine and I just wanted to get to work. And my chicken fingers. But everything wasn't fine. They checked on Josh and realized he was barely moving, he was too small, and he wouldn't respond to anything. So I was sent to another hospital, one that specialized in helping premature babies. At this hospital, they found that not only was Josh small and unresponsive, he was rapidly growing worse. A doctor came in and did an ultrasound and explained to us that it seemed like the umbilical cord was not giving Josh the nutrition he needed - basically, it was only working about half the time. They said I would have to stay in the hospital and they would need to check on him every day for a while. I didn't understand part of the scan and asked the doctor to show me again. And while he was explaining it to me, he noticed that now the umbilical cord had stopped working altogether. Unless Josh was born that night, he would not survive more than a few hours.

Have you ever gone down the steps and missed the very last stair? It's so surprising, so unpredictable, and a jolt of fear goes through you that is so deep and sudden that it takes you a minute to recover, even though you are okay. That's what I felt like. When they told me Joshua would be born that night, it felt like I was missing stair after stair and no one could catch me.

I was rushed to the operating room for an emergency c-section. It was so surreal. I felt like I was watching my life on a movie screen, like I wasn't really even part of it. At 7:08 in the evening, my son Joshua was born. He weighed one pound, seven ounces, and was 12.5 inches long. He was smaller than this Beanie Baby. I could have fit him in my shoe. But the doctors advised against that. The doctor brought him to me, told me I could give him a kiss, and then took him away to the NICU, where they would work for hours to save him.

My son was in the hospital for 115 days. He had dozens of blood transfusions, was on a ventilator for several weeks, and had a level two brain bleed. During his time in the NICU, he developed a blood infection, had both of his lungs collapse multiple times, and stopped breathing on several occasions. I didn’t get to hold him until he was two weeks old. It was a terrible, difficult time in our lives. But God is good, and on June 17, when he was four months old, we finally brought our boy home. Today he weighs eighteen pounds, is trying to walk, and has the biggest ears I have ever seen.

The first few months with Joshua at home are still sort of a blur. He needed to see a pulmonologist, a cardiologist, a physical therapist, an audiologist, an optometrist, and basically any other doctor that ends in “ist.” He was on oxygen at all times and we had to cart his tank and monitors with us wherever we went. And let me tell you, there is no graceful way to unload an oxygen tank from a minivan. None. Don’t even try it. Just accept that you will look ridiculous and move on.

At night, Josh had to be hooked up to a machine that monitored his heart rate and oxygen levels. My husband and I were regularly heard asking each other if we had remembered to plug the baby in. It was stressful, but we didn’t know any other way. We just did what we needed to so Josh would be happy and healthy. And after a while we fell into a routine that, while not exactly easy, was at least doable.

When Josh first came home, my husband and I decided we would wait for several years before discussing any more children, if we even decided to have another one at all. That was the plan that we thought we best for our family. But have you ever heard the saying "We plan and God laughs"? Well, God is still laughing over what happened next. When Joshua was barely seven months old, we found out that we were expecting our second child. We were floored. I took about twenty tests just to make sure I hadn't gotten it wrong. It turns out it's pretty difficult to mess up peeing on a stick and we determined I was indeed pregnant.

I was not excited. This was not our plan. At this point, Josh was still on supplemental oxygen and monitors and saw a specialist of some kind about once a week. I had been laid off from my job just before Josh came home and we had moved in with my parents. We were barely keeping our heads above water. Long story short, another child was not ideal for us at the time.

I know I sound cold. I promise I'm nicer to my kids when I talk to them. Most of the time. But I was panicked. With Joshua, everything had gone wrong. What if the same thing happened again? What if this baby was born even earlier? What if she needed oxygen and specialists and was sick? I didn't think I had it in me to do all of that again. Everyone around me told me God had it under control, and I knew that He did, but I still worried about what that meant for my family.

We found out we were having a girl this time. After a fairly uneventful pregnancy, our daughter Jenna was born on May 29 of this year. She was perfectly healthy and we were able to come home after only a few days in the hospital. Just like with Joshua, I fell in love with her the moment I saw her.

But Jenna also kind of scared me. Not like she was scary-looking or hid in my closet at night with a Freddie Kruger mask; just that she was so totally, completely…normal. There was no monitor attached to her so I could check her heart rate. She didn't need to see any specialists and had no breathing problems. My entire experience with babies until Jenna was born had consisted of hospitals and cardiologists and oxygen tanks and physical therapists. To be able to take her with me to the grocery store, to not have to worry if someone got too close to her at church, to put her to bed without taping a little monitor to her foot - this was all brand new territory for us.

And then the comparisons began. I want to state first that I love my kids equally. I am so proud of both of them. Josh has a pretty significant developmental delay but he works really hard to catch up. And Jenna smells like strawberries, which I appreciate. But it was hard not to separate my children into a "failure" and "success" category. I never realized how behind Joshua was until I saw what Jenna could do. When she grabbed for a toy at two months - something Josh hadn't done until he was almost a year old - I called my husband and told him our daughter was a genius. I tried not to compare, but with every milestone that Jenna met, I would mentally put her in the "success" column and then wait for Josh to do something so I could put him the success column, too.

And after a while, I started to resent Joshua. I know. I am the mother of the year. I was just so tired of dealing with everything. I was tired of explaining our lives to people. I was tired of smiling politely while people informed me that my son was a little small for his age, and they wondered if I was concerned about it. I was tired of working so hard for the tiniest victories that other people got to take for granted.

Are you familiar with Debbie Downer from Saturday Night Live? She was a character that always brought down the mood of whatever room she was in. Any time someone would say something happy or encouraging, Debbie would counter it with something incredibly depressing and ridiculous. Her statements were accompanied by a sound effect that went something like wahhhh, wahhhhhhhh.

I always loved the Debbie Downer skits. But even though the skits were funny and not meant to be taken seriously, it felt like Debbie Downer was following my family, waiting for something good to happen so she could bring us all down again. With every issue Joshua faced, I heard the wahhhh, wahhhh in the back of my mind. He finally started babbling! Yay! Except he should be saying at least ten words by now so we should focus on that. Wahhh, wahhh. He finally learned to hold his own bottle! Wow! Except by now he is supposed to be using sippy cups and we need to take the bottles away. Wahhhh, wahhh. You get the picture. I was so frustrated that he was still behind after all of his hard work, and I started to be angry with him for not catching up faster. And then I compared him and Jenna more and more, to the point where I would write down when Jenna reached milestones just so I could compare to when Josh met the same milestones. It was like a I was keeping a scorecard of my children’s accomplishments.

It took me a while to realize that I was even doing it. And then it took me even longer to realize why I was doing it. Why did I feel the need to compare my children? They are so different in so many ways it would be like comparing an ostrich to an alligator.  I knew that comparing was pointless and would ultimately only hurt me and my kids, but I still felt the need to keep score. I think a lot of us are familiar with that feeling. As moms, we are constantly surrounded by people who are judging our choices and making us feel like we can't even blink without causing permanent damage to our child's psyche. Just look at the arguments between mothers, more fondly known as the mommy wars. We argue about eeeeeeverything. Whether it's where our babies sleep or what kind of surface they will poop on, we find a way to make sure that everyone knows how wrong their choices are. And when we run out of things to argue about, we rehash the original arguments over and over again.

Isn’t that crazy? Just look at how angry we get with people we barely know. Half the time it’s people we have only talked to on the internet. And I am as guilty as the next person of getting sucked into a good cloth versus disposable diaper debate. It’s funny because before I became a mother, I swore to myself I wouldn’t get worked up about stuff like this. I only had a vague idea of what parents did. Feed child, clothe child, try to keep child from beating up other children. But I was sure I could rise above such petty and insignificant arguments.

And then I crossed over to the Other Side. No, not Narnia. The Other Side of the gap that separates parents from non-parents. The side filled with tiny onesies and 800 sets of plastic keys and dogs that whisper "Hug meeee" at four in the morning when you're walking to the bathroom. You can look behind you and see the non-parent side for a little while. Then Dora the Explorer asks you to help her find her map and before you know it the non-parent side is nothing more than a distant memory. And the next thing you know, you’re typing in all capital letters on Facebook to some idiot who thinks that people who use strollers are turning their kids into serial killers while your husband begs you to just walk away from the computer because you’re starting to turn red and the children are scared.

Don’t pretend it hasn’t happened to you. None of us are immune to the mommy wars. It sneaks up on you suddenly, usually over something you didn’t even realize you cared that much about. I remember one time I was in a debate on Facebook over the cry it out method of sleep training. I was halfway through typing a really long paragraph when I suddenly wondered why in the world I gave two flips about which sleep training method a stranger from Canada was using. I couldn’t think of a good answer, and it dawned on me that maybe I was arguing just for the heck it.

Which brings me back to my original question: Why? Why do we do this? Why do I compare myself to other mothers? Why do I worry about what my friends think of the way I raise my children? Why am I online at three in the morning making some poor girl cry because we disagree on which brand of formula is best?

I thought about this for a long time. I felt like the answer was right under my nose but I couldn’t quite put my finger on it. And then it came to me: Guilt.

I don’t know about you, but I have never been less confident in any decision I’ve made than I am in the decisions I make as a parent. Every little choice causes me to worry. For example, my son has recently gotten into the charming habit of throwing his sippy cup off his tray, a past time I’m sure many of you are familiar with. Every time he does this, I wonder what I should do next. It’s like my brain suddenly kicks into overdrive with all the possible responses I can give and the possible consequences they can have. If I get angry at him for throwing his cup, he’ll know it’s bad and he will stop. And then he will resent me for yelling at him and never be able to make friends and he won’t do well in school and won’t get into a good college and he will have to live on the street in a refrigerator box.

Or I could ignore him when he throws his cup and he will see that misbehaving does not get him attention. And then he might try even harder to get my attention because he feels so ignored and he will start lighting dog poo on fire and leaving it on people’s doorsteps and then he will vandalize the school gym and won’t get into a good college and have to live on the street in a refrigerator box.

Or I could pick the cup up and give it back to him, showing him that he has a second chance to do the right thing. And then he will probably learn that none of his actions have consequences and he will never learn manners and will disrespect his teachers in school and won’t get into a good college and he will have to live on the street in a refrigerator box.

See what I mean? I know this struggle is something we all deal with. It’s silly but it’s also serious. My kids are so young that right now I have ultimate control over their lives. I decide what they wear, what they eat, where they go, who they see. And while the control freak part of me likes having that security, the worrying part of me finds it overwhelming and terrifying. I am far from perfect. And honestly I find myself wondering why in the world God would give me two children, one of whom requires a lot of special attention.

And because I feel so unworthy and unable to make these decisions, I look to other mothers to see how they are handling it. That’s how the comparisons begin. I see that Sally Smith is using cloth diapers and I read about how they’re better for the environment and better for babies’ skin and I start to feel really guilty because my own poor kids are in disposable diapers and if I am going to use those I may as well just dress my kids in garbage bags because it’s basically the same thing. And then I start to resent Sally because who is she to tell me how to diaper my kids? My kids are very happy in their disposable diapers and they have pictures of Mickey Mouse and Big Bird on them and those guys have educational shows so I am educating my kids by putting them in disposable diapers. And before I know it I hate Sally Smith for her judgmental ways and for making me doubt myself and for her stupid opinions on her stupid diapers.

That might be the most ridiculous thing I’ve ever said. In the scenario I just described, no one judged me. No one tried to make me feel guilty. It was my own guilt, my own insecurity, that turned a simple observation into an argument.

And please hear me - I am not trying to shame you or blame you for feeling bad when someone judges you. I know that some people are just itching for a fight and go to great lengths to make others feel bad. I know there are bullies in the world who just want to hurt other people and more likely than not, we’ve all run across at least one.

I just think that mothers are easy targets because we are already constantly second-guessing ourselves. And that’s truly where I think the mommy wars come from. The worry that we are not enough for our children, and the guilt over not giving them our best. Even the bullies that have hurt you or told you you’re a terrible mother because of a choice you made - I would bet that they are feeling pretty lost and insecure themselves and just want reassurance that they are doing okay with their own kids.

But I’ve got some good news. It won’t sound like good news at first, but trust me; it’s good news.

We are not enough. And sometimes we won’t be our best. But we serve someone who is always enough and who only gives His best. It isn’t up to us to be perfect. God has promised us that though we will mess up, He will be there to guide us back on the right path.

That can be a scary thought. But it can also be a relieving one. It isn’t up to me to be the best mom on the planet. I don’t have to worry that because I made the wrong decision my child will be permanently unhappy. Isn’t that wonderful? Isn’t it so amazing to know that the very creator of the universe is investing His time into our children, and that he is allowing us to be part of that?

Don’t get me wrong - I am not giving you permission to stop raising your kids. When little Timmy asks you for some breakfast, I am not suggesting that you stay in bed and tell him that God will be along to butter his toast in a few minutes. God has placed with us the task of raising our children and teaching them and loving them. But he didn’t just drop these kids off on our porches and run away. He is there with us, protecting us, redirecting us, showing us that though we are still sinners He still desires us.

When Hannah asked me to speak today, at first I didn’t know what to say. I didn’t think I had much of a story to tell. But over the last few weeks God has shown me so much truth that has set me free. I still struggle. I am still tempted to keep a scorecard for my kids. But now that I know the reasons behind it, it’s not so scary to deal with. I am able to enjoy my family more and rest in God’s promise of redemption for me as a mother, daughter, sister, and so much more.

And now I can compare my kids in a much more wonderful way: I can look at their different personalities and gifts, not as a way to decide who is doing better, but as a way to celebrate their unique identities. My son Josh is a thinker, like his father. He never does anything without deliberate consideration and planning. But he likes to giggle. And he loves people. He would sell me online in a heartbeat if someone gave him a hug and a pop tart. He likes to pretend but he is too excited to keep it up for very long so any games of pretend usually dissolve into giggles pretty fast. He is my strong boy, a living example of the way God works all things together for good. My daughter Jenna, though only five months old, is already much more of a drama queen. She feels every emotion with all of the power her little body can muster. She is impulsive and moves from toy to toy, trying to gather all of them in her hand at once. She is slower to give a smile but once she does, it’s always worth the wait. She is my passionate girl, a living example of God’s faithfulness to His people.

Those are the comparisons I want to focus on. Those are the things I want to remember in twenty years when my kids are in school (or living in a refrigerator box) and I am reflecting on their lives. Those are the things I want them to remember when they have their own kids and struggle with wondering if they are doing a good job raising them.

I will make mistakes. You will make mistakes. It’s inevitable. But I can sleep easier tonight knowing that our Heavenly Father makes no mistakes, and that He loves my kids even more than I do.

The Mommy Wars

Before I became a mother, I had a vague idea of what parents did. Feed child, clothe child, try to keep child from beating up other children. It was one of those subjects that I was woefully but blissfully ignorant of - I really didn't have much use for information like which brand of diapers was best or how you need to move like a frickin ninja to escape infant projectile vomit.

I am still far from an expert, but after I had kids, I crossed over to the Other Side. No, not Narnia. The Other Side of the gap that separates parents from non-parents. The side filled with tiny onesies and 800 sets of plastic keys (seriously, do they even work in the plastic cars? Then WHAT IS THE POINT) and dogs that whisper "Hug meeee" at four in the morning when you're walking to the bathroom. You can look behind you and see the non-parent side for a little while. Then Dora the Explorer asks you to help her find her map and before you know it the non-parent side is nothing more than a distant memory.

The parent side has lots of surprises. You learn words like "Wubanub" and "cluster feeding" and, in our case, "hyerbilirubenimia." But one of the most unexpected surprises I encountered was the Mommy Wars. If you're not familiar, the Mommy Wars is an ongoing battle between mothers (and occasionally fathers) over various methods of parenting. For example: formula feeding vs. breastfeeding, strollers vs. babywearing, cloth diapers vs. disposables, velociraptor vs. t-rex, etc etc. I tend to bop through life in a cloud of glitter and Skittles and assume everyone does the same, so I was really surprised to see how often these issues popped up, not to mention the intensity of the arguments they caused. Articles are flung left and right; everyone from psychologists to school teachers to children's birthday clowns seems to have a scientific opinion on whether letting your baby sleep in your bed will scar him for life. Sometimes people start snapping their fingers and singing and that's when you know that it just got real.

As much as I love a good argument, I found myself avoiding these particular fights as I delved into research of my own (fine, as I copied every single thing my sister did). Not because I was offended. Not because I wanted to interview those birthday clowns for myself to see if their science was accurate. No, my avoidance was due to something much simpler. Something that I think has the potential to end these Mommy Wars forever. Are you ready for this incredible secret? Here you go:

Apathy.

Yes. Apathy. I do. not. care. I do not care if you feed your child formula. I do not care if you breastfeed your child. I do not care if your child only eats hot sauce. Not because I am a serene, peace-loving person who can rise above such petty conflicts as I practice yoga in my meditation garden. I am just too lazy to care. I am tired. I am busy. I am constantly losing one of my children. So at the end of the day, whether you strap your baby to your back in a pretty wrap or with several socks tied together, I'm cool with it. Just don't drop the kid because that's not cool. I mean, I probably wouldn't turn you in or anything. Actually, just writing about it has pretty much sapped my energy so go ahead and drop little Timmy; I won't tell.

This isn't a humble brag where I toot my own lazy horn and show you how I win all the Mommy Wars due to my lack of judging others and indifference to others' judgment of me. Despite the awkward, chaotic mess that is my daily interaction with people, I do care what other people think of me. I'm only human. But I am a lazy human, and while I have tried hard to get worked up over the fact that Sally Smith doesn't believe in disposable diapers...eh. What do I care? Is Sally at my house, throwing away my diapers and forcing me to use cloth ones? Has she hired Tonya Harding to bash me in the knee so I can say a lot of embarrassing things on national television that will follow me forever? No? Then...eh. Sally can have her cloth diapers and I can have my disposable ones and somehow I think the world will keep turning.

So, parents and people everywhere - join me on the Other Other Side. The side where you always feel accomplished because your kids are alive at the end of the day and that's really all you were going for. The side where all your decisions are right because no one was paying attention to them anyway. You don't even have to put on real pants. Take the plunge. Cross over. Drop your cares and worries at the gate - your toddler or dog will probably eat them and then you won't even have to step over them.

Apathy: The real future of parenting. I'd put that on a t-shirt, but...eh.

Clearly my parenting is superior to yours.

It's Totally Different

I recently acquired a second child. I know. I also questioned the wisdom of letting me raise a second child but it's too late now. Plus she is really cute and smells like strawberries so I want to keep her. And sniff her. All the time.

What were we talking about? Oh, right. Children.

In a true representation of my attitude about parenting, I was not that excited to find out I was having a second child. I wasn't sad or mad. Mostly surprised. And panicked. So, so panicked. The kind of panic you feel when you realize you have to make a sacrifice to the porcelain throne while you're in the middle of the check-out lane at the grocery store with a week's worth of food and a child who is trying to eat the handle of the buggy.

But I had a good reason. Most people who read my posts know that my first child (the afore-mentioned buggy-eater) was born very early at 26 weeks and spent a long time in the hospital fighting for his life. My husband and I had decided to wait for several years to even discuss a second child. Except then God was all "LOL you guys are totes hilarious" and we found out we were going to be parents for the second time in as many years. Cue the panic.

Everyone said the same thing: "It will be totally different." The odds of the same thing happening with this pregnancy that had happened the first time were probably pretty low. The doctors, friends, family members - they all repeated that to me over and over. It will be totally different. And as things progressed and continued to go well, I believed it. This time would be totally different. None of the fear, no NICU stay, no wondering when my baby would be home, no driving back and forth to the hospital every day. This time, I promised myself, would be great.

And then I realized that I didn't like that attitude very much. Not that I wanted this baby to stay in the NICU or have any problems, but I was starting to look at my experience with Josh as a bad thing. Slowly but surely I had separated the birth experiences of my children into Things You Never Ever Want To Happen and The Super Best Thing Ever Yay For My Baby. You can guess which one goes in which category. And I really started to hate that distinction.

I get asked all the time if I would change Josh's circumstances at the time of his birth and during his hospital stay. I always answer no, and that is the honest truth. But over the last few months I began to realize that not only would I not change it; I want to celebrate it. I want to shout from the rooftops that while it didn't go the way I had planned, I still got to meet my beautiful baby boy and fell in love with him from the get-go. I want to be just as thrilled over his birthday as I am with Jenna's. When people ask me his age, I want to give his real one, the one that goes with the birthday we will celebrate for years to come as we remember what a blessing he is. I want him to know that even though it was hard, the day he was born was one of the best of my life, right up there with my wedding day and the day Gilmore Girls premiered.

It doesn't bother me that people remind me how different the experience with each of my children was. It was my own attitude about the situation that bothered me the most. Was it different this time? Yes, so incredibly different. Was it better this time? Not even a little. It was just as exciting, just as amazing, and just as incredible the second time around. Because the thing about having kids is that there are ups and downs and everything in between, and you never really know what lies ahead of you. And at the end of the day none of that matters anyway. All that matters is that on your child's birthday, whether he celebrates it in the NICU or asleep in your arms, you have something so fantastic that the rest just kind of fades away. That's is what I want to remember about both of my children. I never want to forget the rest because it's important, too. But the most important thing I can ever take away from both of my experiences is how amazing it was to see them with my own eyes for the first time and feel a love so deep and immeasurable that I knew I was a goner from the very first seconds of their lives.

So, yes. This time around it has been totally different. I wouldn't have it any other way...except for how it was the first time.

On Your First Birthday

Joshua, today is your first birthday. How is that possible? It seems like there is no way a year could have passed since I first laid eyes on you, but I have checked and rechecked and re-rechecked the calendar and apparently it's true. I still have trouble believing it but I guess the calendar wouldn't lie... it is from Chick-Fil-A, after all.

As this day has been approaching, I thought long and hard about what I wanted to say to you. I thought of telling you the story of everything that happened, but you already know it - you lived it. I thought about imparting some deep wisdom to you, telling you the secrets of life that would help you as you grow. But it turns out I don't know that many life secrets and some things you just have to find out for yourself. So I thought for a while longer and decided I would tell you some things that I learned over this year, things that only you could have taught me. 

See, I am not what you call a "researcher" or a "planner" or "someone who is ever ready for anything more than five minutes ahead of time." I leave that to the more sophisticated people around me (who are constantly texting me to ask if I am running late yet again). And I wasn't worried about being prepared for parenthood. I might be a last-minute person but I do good work in that last minute and I knew everything would work out fine if I stuck to my tried-and-true method. 

Imagine my surprise when I found out that the last minute to plan had arrived much faster than I expected. I think that was the hardest part of finding out you would be early - I was just starting to wrap my mind around the fact that I would be a parent. It still seemed surreal. And then suddenly I was going to be a parent in a matter of hours. I remember from the moment the doctor told me you would be born it was as if I was watching my life unfold on a giant screen, like I was aware of what was happening but so sure it couldn't be real. I even told your dad that, moments before you were born - "Maybe this is just a dream," I said. He assured me it wasn't and offered to pinch me to prove it but I declined. Don't let him pinch you, either. 

And then you were there. Less than two hours had passed since we had found out how sick you were and how much you were struggling, and there you were. You didn't cry, because your little lungs didn't work very well yet. The doctors had told me not to expect you to cry because of how early you were but that was the only thing I knew about babies - they cried when they were born. I was sure you would cry. I kept asking your dad why you weren't, and finally concluded that the doctors had done something to prevent you from crying so you wouldn't be upset. What can I say; I was on a lotttt of drugs, man. But I remember every moment after that with vivid detail. Dad got permission to snap a picture of you and show it to me. He watched them work on you and Dr. Manar took a minute to explain what was happening, and then he came over to explain it to me. I heard the words but they still didn't seem real. Dr. Manar brought you to me and said I could give you a kiss. I did, right on your little nose. And then they took you to the 2nd floor, where we would spend the majority of the next four months. 

So my plan not to plan didn't exactly work out, but, really, no amount of planning could have prepared me for this. And I think that is the biggest thing I have learned through this last year: Plans fall apart. Nothing is perfect. God's plan is different from my plan and His plan is the one you want, even if it doesn't seem like it at the time. For all of my lack of preparation, I still like to be in control. I like to know what's going to happen and what my role will be. When you arrived, I didn't have any training. I never took a class. I didn't know how often to change your diaper. I had to learn on the job. But even if you had been born two weeks late, that would have still been true (although the diapers might have been easier to use - yours were reaaaaally small). That's what parenting is: swearing your kid will never watch television and then five years down the road having the Disney Channel schedule memorized and sighing in relief when it's time for Mickey Mouse. 

I discovered that no matter how hectic things got, I could handle it. Some days were a lot harder and some days were pretty easy. But for you I could do anything. I could learn medical terms and ask questions even when I was afraid and accept help from people that I had never met before. You were a pretty solid motivation for putting my own doubts aside and working hard for you, to make sure you had everything. 

I learned just because something isn't the best, that doesn't make it the worst, either. There is a whole world of in-between where things can just be okay. I tend to work in areas of black or white, never grey, but you showed me that when it comes to parenting, especially parenting a NICU kid, grey is pretty much your life. 

You taught me that it's okay to question God. That it doesn't make me less of a Christian, mother, or person. That God not only understands our pain but feels it right along with us. There were days when I opened my mouth to pray and nothing would come out. I was too mad, sad, plaid, whatever, to form any words. And I wondered if that meant I wasn't as much of a Christian as I thought it was. But that's not how it works. God knows my fears and doubts before I do and asking Him questions is okay. 

I found out that there really is a silver lining to every bad situation. You made for a pretty spectacular silver lining. I could (and still can) sit and just watch you for hours, silently cheering every time you moved your little hand or peered up at me with one eye. It was those moments, the tiniest victories, that filled my heart with joy and love for you. You helped me make friends with other parents who had kids just like you, kids who struggled and lived in a world of doctors and specialists and medicine, kids who I now get to see grow and play and who I am so excited for when they accomplish something. The parents became a part of our family as we grew together and rooted for each others' children, taking genuine delight in every good update. These are the people who are in the "club," who know the frustration and anxiety of being a NICU parent. 

You showed me that a total stranger can show the biggest kindness. You helped me see that I was surrounded by friends and family who love me and would do anything to help. You revealed the amazing skills of the NICU nurses, whose kindness and patience with both of us made all the difference in the world to me. I learned that no matter how bad things got, I was never alone. Someone was always praying for you, even someone who had never met you and never will. It is the people who prayed on your behalf, who dropped off gift cards and hugs, who sat in the waiting room for hours and hours - these are the ones who I will never forget, because they made it possible for me to find the strength to continue even when things seemed too tough. When I think of how your grandparents drove overnight in a storm to see you, how your other grandparents stopped by nearly every day to check on you, how your aunts stayed up late to talk to me all night and how your uncles volunteered to help us move and prepare for you to come home, I know without a doubt that our little family is loved so, so much. 

Joshua, you made me a mother. You changed me from someone who thought she understood what unconditional love meant to someone who knows exactly what it is. You have filled the last year with love and laughter and joy and smiles. Yes, there were sad moments, but I wouldn't trade a single one of them. You have taught me so much in only a year and I hope that I can teach you something during your lifetime to repay the favor. Daddy and I love you so much and we are so grateful to know you. Here's to the next year of life lessons from our favorite micro-preemie. 

May 30th

Every day for the last three months I have had some version of the following conversation with someone:

Them: How's Josh?

Me: <insert latest details>

Them: Great! Any idea when he's coming home?

Me: Hopefully somewhere around his due date!

Them: If not before!

(And then we would high five each other.)

But when May came along, that conversation changed. My answer was no longer so confident. We knew Josh most likely wouldn't be home by his due date. No one could say for sure but it was fairly obvious.

And just like that, May 30th didn't matter to me anymore. I still counted how many weeks Josh was and the doctors used that to set goals for him. But May 30th, a day I had been waiting for since September, wasn't important. It was just another day. 

So today when I woke up and remembered the date, I was surprised to realize how sad I was. I didn't expect to be sad. I've known for weeks that May 30th didn't mean anything anymore. But I guess a part of me still held out a little hope. I thought maybe I would arrive at the NICU and the nurses would tell me that a miracle had happened and Josh was totally ready to leave. That is so ridiculous that I'm embarrassed I even thought it. But I couldn't help it.

When Josh was born and the doctor was telling us the game plan, I kept thinking, "We just have to make it to the end of May." I counted out the days - 97. 97 days and we could pretend this never happened. Now May 30th is here, and Joshua is definitely not going home, and I'm kind of at a loss. What do I hope for now? Do I keep counting days? How much longer will I sit in that NICU day after day after day, waiting to hear the doctors say when we can leave?

A lot of people want to remind me how far Josh has come. Do me a favor and don't. I don't want to be rude and I sincerely appreciate all of the encouragement; I truly do. I know how far he's come. I of all people have seen the immense progress and the incredible steps my little micro-preemie has taken and I am so proud of him. He's done an amazing job.

But I just want him home.

I have been wearing my "I'm a Mom!" button every day for 97 days. If I leave my button at home my mistake, I get another one at the NICU. I wear it because I like it and I am proud to be a mom. But I also know that if I don't wear it, no one will know I'm a mom. I don't have a baby with me; I'm not carrying a car seat or pushing a stroller; I don't even have baby things in my diaper bag yet. No one would know I'm a mom without talking to me. That makes me sad. Josh has never even seen his room. He's never seen all the toys I have for him or the funny frog towel my sister gave him. I know he will. I just don't know when. 

May 30th is a bittersweet day for me. I'm so proud of Joshua and all that he has accomplished. And it breaks my heart every single day when I have to leave him behind. So I guess I'll just wait for today to be over and see how May 31st goes.

Fight or Flight

They say that when you're faced with a situation that scares you, you choose either fight or flight. I'm sure this is true for some people out there. Daniel, for instance. Don't scare him. He will fight you. And he has a beard.

But I do neither. I add my own F-word in there: freeze.

Once my mom and I were out walking in the neighborhood. We passed a house that seemed innocent enough at first. Then we heard a rustle, a bark, and, weirdly, the sound of something being dragged across concrete. We looked up just in time to see the world's largest dog, barking at us and running right for us.

Oh, and the dragging sound? He had been chained to a BRICK WALL, pulled the brick out, and was now trailing it behind him like some bizarre doggy fashion trend.

I could have run. I could have braced myself for a fight. What did I do? I grabbed my mom's arm and hung on as hard as I could while Cujo ran at us. I swear he was holding a knife in his paw and wearing an "I Heart The Taliban" t-shirt. And I just stood there, staring at him and trying to use my mind control to convince him that we were not tasty.

My mom also stood there, except she shouted incomprehensible things at the dog, like "Guh! Gahhh! Gruuuuurrrrg!!" At least I come by my issues honestly.

We weren't eaten that day. But we did make my dad walk with us the next day in case the dog was out again. You might be wondering why we didn't walk down a different street. Lets just say we're not known for our tactical genius.

Knowing that I don't have the gumption to fight through a problem or the good sense to run from it like a chicken, I used to worry about what would happen when I had kids. What would happen if little Bambi or Enrique fell off the monkey bars and needed help? Would I just stand there, waiting for my mom to walk by and shout gibberish until someone got help?

I got the answer to this question sooner than I thought I would. The very first time I saw Joshua stop breathing and watched his heart rate fall, I just stood there. I didn't call for help. I didn't touch him. I just watched. Luckily, the nurse is not a freezer and she jumped in there to help.

The other day, I was holding Josh and checking Facebook at the same time. I heard the alarm go off, saw his heart rate drop, rubbed his back until it went back up...and went back to Facebook. It was like I had been interrupted by a mildly interesting show, decided it was boring, and went about my business. It wasn't until I was telling Daniel about it that I'd even realized what I'd done.

So I guess for all the ridiculous shenanigans the NICU has put me through, it has also changed me for the better. I have more confidence. I'm not so scared all the time. I'm downright bold every once in a while. I don't have to freeze. I can fight. And, most importantly, I can fight while checking Facebook.

Maybe I'm stronger than I thought.

The Blame Game

What is the first question you ask when someone tells you they were in a car accident?

Fine, you probably ask if they're okay. That's the polite thing to do.

But the first thing you think, and probably the second thing you ask, is whose fault it was. It's okay. I do it, too. I mean, if you're texting me about your accident I assume you're fine. I need details, people.

Seriously, though, why is that? Why is it so important to know who's to blame? We always want to know whose fault it was and we want to know how the person at fault will pay for their crime. It doesn't just apply to car accidents.

Like farting. Or princess air, if you like. No one made it through elementary school without hearing "He who denied it supplied it" or "He who smelt it dealt it" at least once. Is smelt a word? I feel like it was just made up for a hilarious farting rhyme. At any rate, we as a society are determined to place blame - or in some cases, blame the dog - for any and every bad thing that happens.

I think I know why. I'm no psychologist. But I think we immediately find out who's to blame because it makes us feel better. If we can assign fault to someone or something, it helps us take control over the bad thing that has happened. We can take steps to make sure it never happens again. If someone gets hit by a drunk driver, the answer is easy - make drunk driving illegal. Done. If someone takes the life of his coworker, lock him in jail. Simple enough.

When I found out Joshua would be born 14 weeks early, I wanted something to blame. The doctors for not catching it earlier. Daniel for not helping me see it sooner. The nurse-midwife for not fixing it right away. Myself for not realizing something was wrong with my baby. God for letting it happen at all.

At first I thought it was because I was so angry about what happened. I thought I could take all my anger out on someone and it would make everything better. I tried it. I didn't feel better. Joshua was still in the NICU. Nothing had changed except I just felt worse. But I still looked for someone, something, anything to blame. It was irrational and illogical and I knew that but I kept searching.

And after a while I had an epiphany. Not the cool kind. I didn't suddenly figure out how to make millions of dollars from home or how to really win the Publisher's Clearing House sweepstakes. No, this epiphany was kind of depressing, actually.

I wanted it to be my fault.

I wanted to be responsible for Joshua coming so early. I wanted the doctor to open his chart, point at a number, and tell me I should have kept it lower or higher or anything. I wanted the nurse to say that I shouldn't have eaten peanut butter or go hiking that one time or stay up so late at night. I wanted them to tell me that the next time I have a child, I need to make sure I avoid certain chemicals and places and habits, because those things were responsible for his early arrival.

I wanted it to be my fault because I'm scared.

People have asked us how many kids we're going to have after this. On February 21st, I would have answered at least two, but who knows? Maybe more! Now, though, that question terrifies me. How can I do this again? How can we knowingly set ourselves up for this horrible, draining, ridiculous experience even one more time?

See, if I had something to blame, I could fix it. If they said caffeine caused this I would never drink a drop of caffeine again. If they said I could take a pill or eat special food or take a class, I would do it. I would do it all.

But nothing caused it. It was no one's fault. Pre-eclampsia just happens. Sometimes it causes the blood flow to the baby to reverse. Sometimes it doesn't. Sometimes women with pre-e are fine and don't even need bedrest. Sometimes they do.

It just happens.

I wish it wasn't true. But it is. There are laws against drunk driving but it still kills people. Murderers are put in jail but people still kill. I'm not saying there's no hope or that we're all doomed. But as much as we want to place blame and point fingers so that we can reassure ourselves we're safe from ever having to go through a terrible experience again, it won't help. Blame won't make us feel better. We think it will but at the end of the day it only fuels our anger and makes us sadder. Because as much as we think laying blame will fix the problem, it won't. It can't. Only God can.

And sometimes things just happen.